About the Center

The University of California, San Francisco Medical Center has an international reputation for its excellence as a clinical and research facility and the UCSF Department of Neurology is widely recognized as one of the leading neuroscience centers in the United States.

The Parkinson's Disease Clinic and Research Center at the University of California, San Francisco Department of Neurology has been a Parkinson's Foundation Center of Excellence since 1992.

Mission Statement:

  • To provide comprehensive and compassionate care for patients and families affected by Parkinson's disease
  • To discover causes and effective treatments of Parkinson's disease
  • To educate general medical practitioners, patients, caregivers and the general public 

Events/In the News:

“Hacia Adelante: Navegando el Mar del Parkinson”

Sábado 19 de septiembre de 2020, 9:30 a.m. – 12:00 p.m. PT

Un programa virtual en línea que tiene lugar en la plataforma Zoom

La Parkinson’s Foundation invita a personas con Parkinson, sus familiares y profesionales de salud a acompañarnos en el evento “Hacia Adelante: Navegando el Mar del Parkinson” el sábado 19 de septiembre de 2020. Es una oportunidad única para aprender y compartir como comunidad.

La conferencia cubrirá cómo prepararse para el futuro, cómo hacer decisiones médicas, y la manera en que la familia puede brindar un mejor cuidado. También tendremos un panel de discusión, sesiones de preguntas y respuestas, demostraciones de baile y ejercicios.

Conferencia gratuita en español, se transmitirá en vivo vía internet utilizando la aplicación de videollamadas Zoom. Le enviaremos instrucciones después de registrarse. Para inscribirse visita www.Parkinson.org/Conferencia.

¿Necesitas ayuda o más información, o es un nuevo usuario de Zoom? ¡Estamos aquí para ayudar! Llame a 1-800-473-4636 opción 3 o envíe un correo electrónico a [email protected].

 

Article: ‘Undruggable’ Parkinson’s Molecule Spills Its Secrets

Virtual Moving Day Walk

                     

                      

This fall, Moving Day is going to look a little different. While we will not be able to move together in-person, the exciting news is that communities across the country will be able to come together virtually to beat Parkinson’s. This virtual experience will include everything people love about Moving Day. Tune in on your phone or computer and you will hear real people telling their stories of living with Parkinson’s, loving people with Parkinson’s and working to beat Parkinson’s. And in between those emotional and inspiring stories, we are bringing in fitness experts from around the country to do mini-workout sessions right from your living room. To learn more about Moving Day, visit MovingDayWalk.org and see the full list of fall walks here.

Become a Parkinson's Champion at Home

                     

                      

Put your favorite running route to use and run as a Parkinson’s Champion to raise funds and awareness for Parkinson’s. Complete a Champions @ Home virtual challenge — from a 5K to 26.2 miles — and track your mileage online and become eligible for prizes. Learn more

 

From the Parkinson's Foundation Blog

7 Taboo Parkinson’s Topics and How to Address Them

For many, it is embarrassing to bring up taboo topics with your doctor ― from sexual dysfunction to incontinence. However, when it comes to living with Parkinson’s disease (PD), sometimes these topics can be connected to the disease itself or side effects to PD medications. Learn More

COVID-19 and Parkinson’s Hospitalization Tips: Discussing Advanced Directives

There are many factors to consider when a trip to the hospital is necessary during the COVID-19 pandemic. One important suggestion we have heard from our Parkinson’s disease (PD) community is to make sure to update your Advanced Directives if you have not already. This blog post outlines the key tips for discussing advanced directives. Learn More

How to Openly Discuss Suicide and Parkinson’s

National Suicide Prevention Week takes place September 6th to 12th. This year, we want to prepare people in our Parkinson’s disease (PD) community to not only address the subject but have an engaging conversation with a loved one who might be going through a tough time. Learn More

  •  

Fall 2020 Webinar Series - Young Onset Parkinson's Disease: Join us for the Parkinson's Center's exciting new season of Expert Briefing educational webinars, designed for people living with Parkinson’s disease (PD), care partners and health professionals.

This fall, these webinars will highlight how to navigate life with Young Onset Parkinson’s disease (YOPD) - link to our flyer here  from empowering yourself and your family with PD knowledge, to navigating the workplace and strengthening your relationship. Every live broadcast will feature a PD expert presenter, a person from the PD community and an opportunity for participants to ask questions. Webinars will be held on Tuesdays at 1 p.m. ET.

  • September 15, 2020 - Not What I Planned For Me or My Family with Allison Allen, MSW, LCSW. 

Young Onset PD often emerges unexpectedly, interrupting family life. Taking a proactive approach to care for YOPD can mitigate stress. In this Expert Briefing, we will discuss strategies for coping with a PD diagnosis and learn practical steps to organizing your care team and PD plan, with the goal of empowering you and your family. REGISTER NOW

  • October 27, 2020 - Work it Out: Managing Parkinson’s in the Workplace with Miriam Rafferty, PT, DPT, PhD and Bradley McDaniels, PhD, CRC.  REGISTER NOW
  • November 10, 2020 - Partnering: The Dance of Relationships and Romance with Sheila Silver, MA, DHS, ACS, Clinical Sexologist.  REGISTER NOW
PD Conversations

                     

                      

 PD Conversations is the Parkinson's Foundation’s free online forum. Join a discussion group to connect with other people who share the same interest and challenges. The Foundation's helpline is on hand to answer Parkinson’s questions and provide support along the way.

Substantial Matters - PF Podcast

                                  

 The Parkinson's Foundation discusses the latest in PD research, exercise and treatments throughout their 80+ Substantial Matters podcast episodes. Subscribe now.

Parkinson's Foundation Helpline

                                     

 Parkinson's Foundation Helpline specialists answer calls about all aspects of PD, Monday-Friday from 9:00 am-8:00 pm Eastern Time (English and Spanish), or via email at [email protected]. Helpline specialists welcome calls from people with PD, their families, friends and health care providers.

New PF Book: Medications: A New Treatment Guide to Parkinson’s

                                                 

In the same way Parkinson’s disease (PD) is unique from person to person, so is the combination of medications and dosages used to treat motor and non-motor symptoms. Learn all about the different types of PD medications and what’s in development in our new book. Thank you to our authors and reviewers, Rajesh Pahwa, M.D. and Steven Swank, PharmD, BCACP, from the Center of Excellence at the University of Kansas Medical Center.

COVID-19 Patient Information and Recommendations

                       

General information and precautions related to COVID-19 can be found on the Foundation website here.

Resource for care partners of people with PD who are living in a senior living facility during COVID-19: Parkinson's Disease Care Partner Guide: When Your Loved One is in a Senior Living Facility

Principales Preguntas y Respuestas Sobre el COVID-19 el Parkinson with Adolfo Ramirez, MD, University of Florida: parkinson.org/espanol/coronavirus

PD GENEration Pilot Study

                     

                            

New PD GENEration Pilot Study Results: The Foundation recently announced the preliminary results of the PD GENEration pilot study, the first-of-its kind national initiative that offers free genetic testing of clinically relevant Parkinson’s-related genes and free genetic counseling to help participants better understand their results. The preliminary findings from the pilot study demonstrate the feasibility to conduct comprehensive genetic testing and genetic counseling for the larger Parkinson’s disease (PD) community, as well as the identification of rare genetic mutation carriers linked to PD. Learn more about these findings by reading the press release here.

PD Health @Home

The Parkinson’s Foundation is launching PD Health @Home, a series of virtual community engagement events beginning Monday, April 6th. Visit Parkinson.org/PDHealth for a full list of events. You can register for events of interest and put them on your calendar. Please join us for the following:

Mindfulness Mondays

  • Start your week with calmness, as you take part in guided relaxation techniques to help boost brain power and reduce stress. Sign up now.

Expert Briefings Tuesdays

  • Taking place in home offices across the nation, we will host webinars about the PD topics that matter most to you.  Sign up now.

Wellness Wednesdays

Take Time Thursdays

  • Choose from several virtual events taking place across local chapters. Engage with a PD expert on the topics that matter most to you ― from exercise, nutrition, stress management and more.  Sign up now!

Fitness Fridays

  • A free, PD-tailored 10-part fitness series with instructor Joellyn Fox, DPT, from the Dan Aaron Parkinson’s Rehab Center, Penn Therapy & Fitness at Pennsylvania Hospital will feature a new focus every week, from balance to coordination, posture and more. Videos will be released weekly, beginning Friday, April 10th through June 12th.  Watch now!

Moving Day

All spring Moving Day walks are going virtual on May 9th. For more information or to join us, please visit www.movingdaywalk.org.

COVID-19 Patient Information and Recommendation:  

General information and precautions related to COVID-19 can be found on the Foundation website here. 

Hospitalization Resources:

  • The PF offers Aware in Care kits for PD patients who find themselves in the hospital.  If you don’t have an Aware in Care kit, you can order one here: http://www.parkinson.org/Store.
  • Infections can have an effect on Parkinson’s symptoms and especially in hospital settings, adherence to your Parkinson’s medication schedule is important. 
  • Patients are encouraged to update their Medication Form and place the form and several days of their current medications (in the original bottle) inside of their Aware in Care kit bag. 

New Spanish Materials!

The Foundation has translated a few of their newly diagnosed resources in to Spanish to better reach people earlier with support and steps to take after a diagnosis (see below). Since many of the events scheduled for the spring are postponed, we wanted to let you know they have been now live online: https://www.parkinson.org/espanol/recursos-en-espanol.

La Fundación ha traducido algunos de nuestros recursos para recién diagnosticados con la enfermedad de Parkinson en español, para llegar a las personas de manera temprana con materiales de apoyo y pasos a seguir después de su diagnóstico (ver recursos abajo). Dado que muchos de los eventos programados para la primavera serán reprogramados, queríamos hacerle saber que han sido compartidos en línea y en vivo: https://www.parkinson.org/espanol/recursos-en-espanol. En nombre de la comunidad de Parkinson, gracias por su dedicación y trabajo!

Recién Diagnosticados:

·         Acerca de la enfermedad de Parkinson

·         5 pasos para vivir mejor con Parkinson a partir de hoy

·         Preguntos clave para su consulta médica

Available Resources:  As a reminder, the Foundation has a variety of resources available to support the PD community, including:

 

 

 

 

Recorded presentations from our 9th Annual Patient & Caregiver Symposium can be viewed on our YouTube link here: Video playlist

 

Watch Other Videos by our Experts

 

UCTV - "Parkinson's Disease: A Dose of Hope"

UCTV - "Parkinson's Disease: Latest from the Experts"

 

See list of all videos

View our YouTube channel